It’s a New Year and a time for resolutions. All parents and caregivers face some level of stress in managing their households. In addition to the “typical” family tasks, families with children (including adult children) with I/DD, have additional responsibilities. Researchers at Boston Children’s Hospital, Rand Corp., and University of Southern California released a report in late December stating that families with children with special health care needs provide 1.5 billion hours of care each year to their children with chronic illnesses or disabilities. (https://news.usc.edu/114518/caring-for-special-needs-children-at-home-brings-high-cost/) The study, which analyzed government-collected data (https://www.cdc.gov/nchs/slaits/cshcn.htm), determined that these hours of care would cost a total of $36 billion if performed by home health workers.
On Friday, December 16, The Arc of Massachusetts lit up the Prudential Tower in our signature orange as part of The Shops at Prudential Center 31 Nights of Light celebration. The Prudential Center selects a nonprofit partner for each night in December and lights the Prudential Tower in the organization’s color. The annual event has been taking place since 2009 and helps to raise awareness of important causes. The Arc of Massachusetts was delighted to be chosen as a lighting partner this year!
The proceeds of the Gala support the work of The Arc of Massachusetts and our advocacy efforts on behalf of individuals with disabilities. President Tracy Atkinson and the Board of Directors provided tremendous leadership for the Gala and as a result we have very strong support from the corporate community again at this year’s gala. We are very grateful to State Street Corporation for their support as the Presenting Sponsor and PwC, which was a Platinum Sponsor.Organizations in our field showed their appreciation for The Arc’s work; 32 agencies, including 14 of our chapters, were represented, many of them participated as sponsors. In addition, many families attended the event.
Donald Trump will be our 45th President. His acceptance speech talked about unity: “Now it is time for America to bind the wounds of division, have to get together. To all Republicans and Democrats and independents across this nation, I say it is time for us to come together as one united people. It is time. I pledge to every citizen of our land that I will be President for all of Americans.” The work of uniting our county cannot begin soon enough.
On October 27, State House News released an article stating that new cuts would not be imposed on the state budget. They quoted a letter from Kristen LePore, Administration and Finance Secretary, to the chairs of the House and Senate Ways and Means Committees. “We are closing the budget gap,” Lepore wrote “through fiscally prudent solutions such as unanticipated non-tax revenue and a voluntary separation incentive program. While we are not reducing allotments at this time, we are actively monitoring tax revenue and additional spending exposures in the coming months before finalizing our decision on the extent of allotment reductions and other actions to ensure that the FY17 budget is in balance.”