As you know, the Disability Law Center and The Arc, along with others, have been working on addressing the need for the presence of a family member, guardian, or caregiver for those with I/DD entering triage, the emergency department, or ICU.
We were hoping for full clarification of this issue in the revised Crisis Standards of Care. The CSC does address reasonable accommodations, but we need more specific language.
Please take a moment to write to your Representative and Senator to advocate for this specific issue. Make sure to edit the section where the template asks for your personal story, or omit if you do not wish to include one.