#DontCutUsOut: Act Now To Ensure Funding For Services For Adults With I/DD During Re-Opening

Adults with autism, Down syndrome, cerebral palsy, or other intellectual and developmental disabilities served by the Department of Developmental Services (DDS) will lose services if funding and policies don’t meet the requirements of the re-opening period and thereafter. The campaign #DontCutUsOut is to ensure that our safety net continues.

It is close to the end of June and we have no idea of the additional funding available for day and employment programs across the state.  Agencies can ONLY be paid by the Commonwealth for services they deliver each day.  However, re-opening after this COVID-19 pandemic requires partial attendance, more space between people, smaller groups in vehicles and in buildings, significant cleaning supplies, etc.  And partial attendance means group homes will continue to need staff during the day, for which they do NOT receive funding.  Our programs are primarily funded by the state.

None of these costs have been allocated.  Some agencies have begun laying off staff to afford the new costs.  Without new funds, either people will lose services (including delays for those Turning 22) or services will be significantly reduced. 

Some agencies will close.  A high number of adults with autism, Down syndrome, cerebral palsy and other conditions will be affected and their families.

  1. 10,000 persons who receive day and employment services
  2. 9,000 individuals in congregate living
  3. 1,300 new students in transition from high school to adult life
  4. 11,000 receiving MassHealth day habilitation (some of the 11,000 have part-time services here and through DDS)

The network of services will not recover if decisions for additional funds and flexible policies are delayed.  Please respond to #DontCutUsOut and send an email to the Governor with copies to Speaker DeLeo and Senate President Spilka.

Fill out the template below to contact Governor Baker, Speaker DeLeo, and Senate President Spilka regarding the urgent need for funding.

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43 Comments:

  1. Funding for individuals with autism, I/DD is an absolute necessity to ensure quality of life and emotional well-being of valued members of society. Day programs allow for productive days and staffing for residential services is already severely impacted as there is not enough staff to maintain the Group Homes.

    • Working 16 years with people with disabilities and through the years I have seen so many of them achieve their accompmishments in life. Without the funding for our day programs our members wont have a place where they can come into each day and feel like they are working on their own accomplishments. I have seen smiles. Laughters and tears. And many amazing relationships made within our day program. We are a family there. Please keep the funding going so our program members can have a place to go and enjoy their friends and to be able to continue achieving their goals in life. Thank you

      • As soon as there is a safe way to re-open Day Programs for Adults with disabilities, please ensure that funding is available for the ESSENTIAL services they need. When is comes to competition for funding, DAY PROGRAMS should be at the top of the list.
        Thank you.

  2. Ensure funding for services for adults with I/DD during reopening.

  3. Please provide the funding for reopening our day services and group homes for special needs adults. They need their program

    • Over the past month my son whom is 22 years of age and in a group home which he truly enjoys has show dramatic signs of needing more social interaction. He has verbally expressed his desire to restart his day program every day we communicate on FaceTime. I truly hope we restart these programs as soon as the agencies can find a safe way do accomplish this. If the financial support is lost for these programs my son will regress socially, and verbally, while also loosing some of his life skills his day program reenforces.

  4. Do not cut funding for Adults with autism, Down syndrome, cerebral palsy, or other intellectual and developmental disabilities served by the Department of Developmental Services

  5. Cindy Rehnberg Crimmins

    The quality of life for individuals with intellectual disabilities, autism, Down syndrome, and cerebral palsy is as important as yours or mine. Their day programs are not luxuries; they are vital to their overall well being. Adequate funding for staff and PPE is essential to the quality of life for our loved ones and cherished members of our communities.

    • PLEASE!provide the founding reopening for our day,for our especial need adult They need their programs🙏

  6. We cannot let these young adults lose services, which are vital to their well-being!! Day programs are essential!! Please provide the needed funding for re-opening, please…

  7. Adults with disabilities need support from everyone. Each individual needs and wants something different. We need to provide funding so each individual can become the best that they can be. If services are cut, what happens, most will sit in a house not go out and see the world. This can not happen. Please fund service for the ones that cant speak. They matter too.

  8. Day programs have provided the disabled community a voice, a reason and above all equality. Please fund these programs !!

    • Maria Nicholson

      It is extremely important that these programs continue to be funded. These adults need the programs and everyone must understand that they can’t advocate for themselves. Please, please fund!

  9. Kevin Harrington

    It is the obligation of the state to provide our most vulnerable citizens with the necessary resources to thrive in their communities. For so many adults with I/DD, day programs provide the social and creative environment that is so vital to their well-being and engagement with the community. Quarantine alone has already taken a noticeable cognitive toll on my brother. I can’t imagine, and I don’t want to imagine, what the loss of funding for his day program will mean for him. Furthermore, the staff who work with my brother are some of the kindest, most charitable, most empathetic people that you could ever meet. Please don’t strip the livelihood of our social workers who live in service of our loved ones with I/DD. It would be a tragic failure of government if these programs were to lose funding. Please maintain the existing DDS funding structure for our day habilitation and congregate living programs.

  10. Adults with disabilities need support from everyone. Each individual needs and wants something different. We need to provide funding so each individual can become the best that they can be. If services are cut, what happens, most will sit in a house not go out and see the world. This can not happen. Please fund service for the ones who can’t speak. They matter, too.

    • As a parent , when will we ever stop worrying about budget issues for our Angel’s! There should never be an issue with budgets for this community!
      We go through enough struggles, this should not be one of them!
      My challenged adult daughter deserves to be part of society.
      It’s their constitutional right!

      • Annemarie Fitzgerald

        Funding is essential for individuals with disabilities.
        Please help these folks with brain injuries, autism and other challenges be their best selves; it’s vital for their wellbeing!
        We speak up for those who don’t have a voice.

  11. Please don’t cut the funding for adults with disabilities, as they need support from everyone. Each individual needs and wants something different. We need to provide funding so each individual can become the best that they can be. Continue to fund service for those who can’t speak – they matter, too.

  12. Pingback: NuPath, Inc. Act Now To Ensure Funding For Services For Adults With I/DD During Re-Opening

  13. I’m understand about this happenend to COVID for berkshire hills and i do have programs when i am down syndrome now so i know it’s re-opening to berkshire hills soon and i just want to know that i am responsible from Berkshire Hills Music Academy.

  14. Funding is going to be a crisis for everyone! Covid 19 has affected the world. Yes, cuts will be many…. however, the people we serve in this population are the most vulnerable. We are their voice, please think very hard when selected where budget cuts are made.

  15. Stephen Wallace

    It is critical for all young adults to have access to very important Day Services. They provide access to friends, learning opportunities, and community involvement. Please fund this critical service so these special adults can have the quality life they deserve!

    • Cutting funding to this population of citizens should not even be addressed, in fact, they should be given bonus monies as they have had to constantly as nonprofits struggle for funding. These c

  16. Cynthia S Bousquet

    Please renew funding for these programs. My son has shown such great strides under HMEA. Each individual is supported with a plan (ISP) and they each have such dedicated workers. PLEASE, their worlds are so improved with these programs. They need to be funded.

  17. #DONT CUT US OUT
    Our young adults are no different than you and I. They like their daily routines which include their day programs. It allows them the consistency that is needed to be productive, be themselves, and enjoy the sociability of friendships. Their lives depend on the funding needed to ensure they can become the best person they are meant to be. My son loves his day program at Coastal Connections in Amesbury and even though he is non-verbal he expresses his concerns to me by his actions. I can definitely see he is missing his daily routine and friends. Our day programs provide what is needed to give our young adults a healthy, learning, and caring environment and the satisfaction of being a part of our society. It is their right! Be well…

  18. cynthia Ann perrone

    Individuals with disabilities need their day programs to give then a sense of pride, accomplishment, learn new skills, a structured life with a routine that fits their needs. Our most vulnerable needs your support. Please advocate for our children, grandchildren, siblings, cousins, aunts and uncles. If funds are cut, they will have no place to go, no place to be heard, no place to be understood!!

  19. Coastal Connections is a very important program for my 31 year old son. Without it he has no peers to interact with, no job to attend to teach him skills he needs. These individuals deserve funding to continue the programs they need to lead a productive life.

    • Jill & Peter B.

      #DON’T CUT THEM OUT!
      Life is difficult enough – times that by 100 and you have what every individual with a disability faces each day. Without these valuable programs, services and dedicated staff, these special individuals will certainly regress! My 61 year old brother has attended these programs most of his life, learning valuable life skills, enjoying friendships outside his family and developing a sense of worth within his community. More importantly, he is HAPPY! PLEASE – DON’T CUT THEM OUT!

  20. Dorothy and Raymond Landry

    Day programs for disabled individuals is absolutely necessary. Without them this population who need services would be left without resources for the future. Please continue to fund the day programs through DDS. This is so important. Please view these programs as essential! This population needs everyone behind them since they can’t advocate for themselves.
    Thank you,
    Dorothy and Raymond Landry

  21. Joseph Biagioni

    Please fund the services to our day programs, it is essential to our loved ones daily lives they work so hard to maintain. The DESERVE our help and support. Each day they don’t go to a program or work they are losing important skills. We are their voices, HEAR US!!

  22. Elijah Agurimah

    Imagine having to pay staff 24 hours with overtime to do shelter in place as a way to limit the exposure of individuals to COVID 19 for a couple of months. Also consider the shortage of staff even after reopening due to COVID issues resulting in huge overtime coverage. One gets scared of what will happen to the individuals we support as well as staffing without an immediate funding to our sector

  23. As a parent , when will we ever stop worrying about budget issues for our Angel’s! There should never be an issue with budgets for this community!
    We go through enough struggles, this should not be one of them!
    My challenged adult daughter deserves to be part of society.
    It’s their constitutional right!

  24. Please renew funding for these programs. I know people who have been helped tremendously by them. These programs essential!

  25. Renewed funding is essential to all the individuals with developmental disabilities enrolled in the day programs at Sunshine Village. The program is wonderfully diversified and provides each individual with purpose and pride along with giving them structure, education and the chance to reach their potential and cultivate friendships. Please consider the importance of the day programs in providing support, as these individuals can not advocate for themselves. Funding these programs should be a priority to give the disabled the quality of life they deserve.

  26. Joanne Sullivan

    Ensure funding for services for adults with I/DD during reopening and advance the state’s commitment to all of the citizens of our great commonwealth.

  27. Please renew funding for these essential programs —

  28. The work we do is essential to the well being and the growth of every client. One of the proud moments of mine is when I would see my client’s face when he got hired at a local hotel. That not come without the support and ongoing training for the job.
    I also am proud to know that we help our students find their own voice and how to be men and women. students are learning coping skills to get through difficult times. You have to see it for your self because words do not do it justice. Funding that we received is well spent on the lives of the most incredible people I have ever met.
    This right here would be a good start to the ongoing work that is so badly needed.

  29. Please don’t cut Funding for individuals with Cerebral Palsy or anyone with disabilities. Day care should be a priority. Please, please do not cut any of these programs, these beautiful people are looking forward to go every day to this programs. Do not allow these individuals to stay home it would not be healthy for them. They need to be part of the society.

  30. Please don’t cut any funding for the individuals with disabilities! The day programs are so important to keep running. It allows them to become productive adults in their community. The staff is vital also! I am advocating for those who can’t fight the fight! Thank you for caring and helping!

    • The Day Programs are an absolutely essential part of those special needs citizens for their mental, emotional, and physical well being. DO NOT cut their funding as it is so much a part of their lives in their communities. These individuals have enough to struggles so losing their programs would be disastrous for them. It is hard to believe that this even would be considered!

  31. Barb DiClementi

    Please don’t take this away from our adult children.
    This is their reason to get up in the morning.
    We need these programs more then you will ever understand unless you are in our shoes.
    PLEASE DO NOT CUT THESE FUNDS!!

  32. Nicole ODonnell

    We need funding for our children! Many of us can’t go back to work because services are not being provided. I’m a single mother, going to grad school and taking care of my daughter. I haven’t been able to return to work because I have no help from DDS even though I have a case worker. I’ve called so many people for help and no one ever calls me back or even tries to advocate for us! We need just as much help maybe even more!

  33. Christine Connor

    A life without day programming for our children is a half-life. We have seen it over the last few months and hard won gains have been lost daily. Please protect our family members and provide sufficient funding for safe and robust day programming. It is like oxygen for our children.

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