Jen’s Story

“I worry from the time I wake up, to the time I go to bed and sometimes instead of sleeping, I’m worrying! Am I doing enough? What should I be doing? Can I trust the school? How do I help him fit in and enjoy his life? How do I find the right therapist that can meet our needs? There is a constant feeling of guilt that I should be doing something more, something less, something different. Our insurance doesn’t cover all of my son’s needs, so there is always a financial concern. It is a constant strain on my marriage and I tend to neglect my own personal well being. Yet my son is the love of my life and my favorite person in the world! ”     – Jen, mother of a 10-year old son with Autism


Jen is not alone. More than 200,000 adults and children in Massachusetts have an intellectual or developmental disability. Each family has its own story. It often tells of mothers and fathers, brothers and sisters, and grandparents who are trying to do what is best for their loved ones. They face daunting challenges and doubts about how to help their family members live healthy, safe, fulfilling lives.


The Arc of Massachusetts is working to ensure that they have the resources they need by:

  • Advocating for increased funding for services and supports
  • Offering educational resources, including webinars, clinics, and the Turning 22 Conference
  • Spearheading the Supporting Families campaign to increase funding for family caregivers
  • Training medical students in the special needs of patients with I/DD in Operation House Call


You can help us remain at the forefront of the struggle to build better lives for all members of the community. Can we count on you to make our work possible with a donation?


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