Lee’s Story

Walking“My 22-year old son has Down syndrome. As a single father, my biggest challenge is being my son’s only caretaker. It means that I can’t work and we have to depend on his SSI and food stamps. My son requires assistance with all ADL (Activities of Daily Living) and I have to be there for him 24/7, with the exception of the time he is in his day program. Every morning, I get my son ready to go to his day program. When he comes back in the afternoon, we eat dinner and, if the weather permits, we go for a walk, bathe, then sleep. As a leukemia survivor, I am grateful that my son is healthy, but I am emotionally exhausted and stressed out.”              – Lee, Charlestown


Lee’s experience as a caretaker is not unlike those of thousands of others across the state, each striving to do what is best for their family members.


The Arc of Massachusetts is working to ensure that they have the resources they need by:

  • Advocating for increased funding for services and supports
  • Offering educational resources, including webinars, clinics, and the Turning 22 Conference
  • Spearheading the Supporting Families campaign to increase funding for family caregivers
  • Training medical students in the special needs of patients with I/DD in Operation House Call


The Arc of Massachusetts and the more than 200,000 individuals who have intellectual and developmental disabilities need you.  By making a donation today, you can help us remain at the forefront of the struggle to build better lives for all members of the community.


Please visit http://thearcofmass.org/get-involved/ways-to-give/ to learn more and to make a gift.

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