In the United States, over 71% of adults with intellectual and developmental disabilities (I/DD) live with their families. Within that set of approximately 3.5 million individuals, 24% live with caregivers aged 60 or older (Braddock et al., 2015; Fujiura, 2012; Larsen et al., 2001).
In 2015, Massachusetts estimated the amount of individuals with I/DD living with family was 74,822, or 70%. 25% live with caregivers over the age of 60.
It was these statistics that prompted The Arc of Massachusetts to reach out to older caregivers. Over the course of the last year, five Older Caregiver Forums were organized across the state. We co-sponsored the Forums with senior services organizations, family support centers and affiliates, and the Department of Developmental Services.
In total, 195 caregivers and professionals attended these forums. The groups were asked three questions:
- What is going well?
- Where are the gaps?
- What are your recommendations and what should service providers know?
The Arc of Massachusetts is now pleased to present our findings as a result of these forums, including information on what steps need to be taken next.
For more information on this project, contact Kerry Mahoney at Mahoney@arcmass.org.