Leo’s Letter: Uncertainty

On Monday, Governor Charlie Baker vetoed an additional $320 million from the legislature’s state budget, including a cut of more than $7 million from the Department of Developmental Services (DDS) budget. The impact of the reductions mean uncertainty for many people and this will be heightened by the continued uncertainty caused by Capitol Hill policy makers. Although we believe that the legislature will override the Governor’s vetoes, we don’t know for certain.


This week US Senate Majority Leader McConnell said, “Regretfully, it is now apparent that the effort to repeal and immediately replace the failure of Obamacare will not be successful.” He added that he will keep trying. Those attempts may affect both the Affordable Care Act and Medicaid. Again, an uncertain future is leaving states, service providers, and recipients in confusion.


In a 2016 Forbes opinion piece, Neil Howe wrote, “When we leave our comfort zone, everything changes. We no longer know how the world works. We become anxious and fearful… Minutes turn into hours.” In confusion, Howe says people act. We know many people with disabilities will be wondering about their future. They will be looking for certainty.


But it’s not about just this year. Are we facing a decade-long fight over Medicaid and health care? What will that mean for the services that our constituents require?  Multiply the clouds caused by today’s uncertainty hundred-fold!


When we face uncertainty, we often avoid planning for the future. When we act quickly, disappointing outcomes follow. Let’s not bend to uncertainty. Let’s act where we know we can make a difference.  Join us in building a more certain future!


  1. Like most parents of people with cognitive disabilities I live with the terror of what will happen to my son after I die. It’s so easy to reduce support for the most vulnerable without really comprehending the suffering such actions create. The attitude seems to be that supporting people with cognitive disabilities is discretionary rather than obligatory. Does Charlie Baker know the level of suffering he is creating by denying support to people who genuinely can’t help themselves?
    It seems that his personal political ambitions are more consequential to him than the lives of the cognitively disabled. It seems Mr. Baker sees the disabled as a financial burden rather than people who deserve a life of dignity and inclusion.

    • Thank you Anita for your reply. Every year we face a push-pull between the dollars available and funding for services. We need to keep educating the Governor and legislators about their importance.

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