Workforce Crisis: Direct Support Workforce

There is a workforce shortage crisis in Massachusetts for Direct Support Workforce, including home care workers, personal care attendants (PCAs), and direct support professionals (DSPs), that support individuals with intellectual and developmental disabilities (IDD) and autism in the Commonwealth.

Solutions to the workforce crisis are critical to ensuring that people with IDD and autism can safely live, work, and contribute to their communities.

Frequently Asked Questions (FAQs)

What is the problem?

  • 72% of Massachusetts human service providers report that it has become increasingly more challenging to fill job openings over the past three years.
  • A National 2017 survey of family caregivers reported that 9 out of 10 (92%) caregivers indicated difficulty with finding DSPs.
  • There is an approximate 43% national turnover rate annually for DSPs, and the average national wage is less than $11/ hour, making it difficult to provide continuity in services, provide a family-sustaining wage, and threatening the quality of care for people with disabilities.

Why is this happening?

Challenges and other key factors negatively impacting the retention and recruitment of the direct support workforce are not limited to the following:

  • Mean wages of DSPs are below janitors
  • Poor benefits and limited training/education opportunities
  • COVID-19 pandemic impact
  • High student loans
  • High cost of living/low unemployment rates in Massachusetts
  • Increase in incidence rates of Autism Spectrum Disorder and people with IDD are living longer
  • Poor status/image (unlike teachers/police officers/nurses)

What is at stake?

The work that the direct support workforce does is invaluable to the IDD community, serving as the linchpin to successfully live the independent life they choose in their communities with the proper supports.

Each year, about 1,300 individuals with intellectual and developmental disabilities turn 22, aging out of the school system and into adult services in Massachusetts.

We can prevent people with disabilities from entering costly, restrictive, and often segregated institutional settings if support staff members are successfully recruited, professionally trained and retained.

What can we do to end the Workforce Crisis?

To recruit and retain a stronger, more qualified direct support workforce, we ask for a goal of achieving $24/hour for direct support staff by 2025. Increased salaries for front-line managers and other experienced or mid-level managing human services workers, not including executive-level staff, should also be adjusted based on salary compression. We also request the Executive Office of Health and Human Services implement a long-term plan to address the direct support workforce shortage.

What does the Direct Support Worker do?

DSPs could have many different titles including direct support specialist, personal care assistant, habilitation specialist, job coach, residential counselor, family care provider, personal assistant, and others.

Direct Support roles include (but are not limited to) assisting people with IDD with activities of daily living such as dressing, toileting, medication administration, or mobility and addressing medical emergencies or behavioral crises. DSPs also serve as bridge builders to the community so that individuals can be employed, participate in community social activities safely and make use of resources such as transportation and medical services.

Important Workforce Documents

Most Recent Documents

American Rescue Plan Act

On July 20, 2021, The Arc provided testimony at the Joint Hearing on the American Rescue Plan Act (ARPA) Funding.

Download
Better Care Better Jobs Act

On July 25, 2021, The Arc and undersigned organizations and individuals released a letter urging the Massachusetts Congressional Delegation to support the Better Care Better Jobs Act.

Download
Home and Community-Based Services

On August 16, 2021, Ellen Taverna, The Arc’s Director of Public Policy,  testified at an EOHHS virtual hearing regarding workforce rates for certain Home and Community-Based Services (HCBS), related to Section 9817 of the American Rescue Plan Act.

Download
The Arc’s September 2021 Statement

Here is The Arc’s September 2021 statement on the COVID-19 pandemic that puts forth recommendations regarding COVID-19 vaccinations, testing, and infection control efforts.

Download

Workforce Initiative Contacts

Leo Sarkissian

Executive Director
Sarkissian@arcmass.org
(781) 891-6270 x106

Ellen Taverna

Director of Public Policy
Taverna@arcmass.org
(781) 891-6270 x112

Maura Sullivan

Director of Government Affairs
Sullivan@arcmass.org
(781) 891-6270 x113

Charlie Fiske

Government Relations Specialist
Fiske@arcmass.org
(781) 891-6270 x111

Workforce News

Budget & PolicyGovernment AffairsNewsWorkforce Initiative
May 16, 2022

Your Urgent Advocacy Is Needed! Contact Your Senator To Support These Crucial Budget Amendments

It’s time to rally! We need your help to ask your Senator to cosponsor and support the chapter 257 workforce amendment and other important amendments filed by our Senate Champions.…
Budget & PolicyGovernment AffairsNewsWorkforce Initiative
May 4, 2022

Urgent #WeActWednesday: Contact Your Senator To Support The Direct Support Workforce Through Chapter 257

URGENT NEED TO CONTACT YOUR SENATOR - PLEASE READ! The Workforce shortage crisis is hitting critical levels! About 7 thousand individuals are still without services and supports and family caregivers…
Budget & PolicyCOVID19Government AffairsNewsWorkforce Initiative
April 29, 2022

New NPR, Boston 25 Stories Highlight Funding Needs Of Our Workforce, Community

On Thursday, April 28, two stories were aired - one on NPR and one on Boston 25 News - that put a spotlight on the direct support workforce crisis and…
Budget & PolicyCOVID19Government AffairsLeo's LettersNewsOperation House CallWorkforce Initiative
April 28, 2022

Leo’s Letter: The Workforce Crisis and Our Community’s Healthcare Needs

Two news stories will be airing soon about our constituents: one on our field’s continued workforce crisis, and the other about the need for education at hospitals and to health…
Budget & PolicyCOVID19Government AffairsNewsWorkforce Initiative
April 6, 2022

The Arc’s Government Affairs Team Participates In 3 Legislative Advocacy Events On Budget, Workforce

Leo Sarkissian, Maura Sullivan, and Ellen Taverna participated in three legislative advocacy events hosted in person and virtually by The Arc Chapters on Friday, April 1. Leo joined Incompass Human…
Budget & PolicyCOVID19Leo's LettersNewsWorkforce Initiative
March 3, 2022

Leo’s Letter: The Workforce Crisis Continues. It’s Time To Act.

The ongoing pandemic has meant isolation 24/7 for many of our constituents and for primary caregivers. These two quotes (names not included) from individuals from different regions tell the story…